Endometriosis - Fast Facts

Did you know that 1 in 10 women suffer from endometriosis? Did you also know that a lot of women don’t even know that they have endometriosis because it can only be diagnosed surgically? Did you know that having excruciating pain on your period is, in fact, not normal? This disease can be debilitating, it definitely was for me. I think it is important to know that there is a way to make the pain manageable and make this disease a non-debilitating one. Curious if you may have endo or, if you currently have endo, if some symptoms that you face are part of this disease or something separate? Here are some endo fast facts:

  1. “What is endometriosis?” was the third most googled health related question in 2018.

  2. Endometriosis is a disease where the tissue that lines the inside of the uterus begins to grow on the outside. It is usually still contained to the pelvic region (ovaries, bowel, tissue lining your pelvis) but in extreme cases can go into other parts of your body. During your flow this tissue thickens, breaks down, and bleeds but since it is misplaced it doesn’t have a way to exit the body so it becomes trapped and can lead to cyst formation, adhesions, and pain (as well as many other symptoms listed in number 5).

  3. 1 in 10 women suffer from endometriosis, but it could be more since it has to be diagnosed surgically. This is approximately 176 million women worldwide.

  4. On average it takes about 10 years and 8 doctors from symptom onset to accurate diagnoses of endo.

  5. Symptoms may include painful cramps, painful ovulations, pain during sex, chronic pelvic pain, fatigue, infertility, weak pelvic floor, intense bloating, migraines, abnormal bleeding, nausea, diarrhea, back pain, vomiting, blood clotting, urinary frequency and/or urgency, and allergies before and during your flow.

  6. No two women experience endometriosis the same way.

  7. Surgery can help some women, but we are finding that it actually can irritate the endometriosis and make it worse.

  8. YOU. HAVE. A. CHOICE! Do your research if the doctor is suggesting birth control, laparoscopic surgery, lupron (induced menopause), and/or a hysterectomy. Like I mentioned in point number 7 - these are temporary fixes and often the endo doesn’t even go away. Yes, even in a hysterectomy!

  9. There is no known cause or cure for endometriosis, but like I mentioned above there are nutrition and lifestyle changes that can help you manage the symptoms extremely effectively.

I am a living breathing example of someone who went from birth control, laparoscopic surgery, lupron (TWICE), and came extremely close to a hysterectomy just to get rid of the pain to changing my eating habits and lifestyle and not even taking a single advil while I am on my period. It is manageable without going to extreme measures that aren’t even guaranteed to make you feel better - in my case they certainly didn’t. Don’t lose hope. Just do your research and ask your questions. I’m here as a resource if you need it as well!

-SS